Mission Statement
Empowering our clients and families with knowledge, through quality comprehensive programs and services.
Empowering our clients and families with knowledge, through quality comprehensive programs and services.
Vertex Pharmaceutical's new gene therapy to treat sickle cell disease was approved by the FDA in December 2023. Join us Thursday, April 18, 2024, to learn about this new gene therapy. You may join in-person or virtually (by Zoom).
Register by Monday, April 15, 2024.
Registration is required for attendance as space is limited for in-person attendance. Those attending virtually will receive the Zoom link after submitting registration form.
Secure your spot. Register today.
CLICK HERE TO REGISTER
2ND ANNUAL STEPS FOR SICKLE CELL WALK
Saturday * May 25, 2024
Lyons Park ( 180 Lyons Park Avenue, Mobile, AL 36604)
On-site registration and check-in: Begins at 6:30 a.m.
Walk begins: 7:30 a.m.
$25 ENTRY FEE
For additional details about the 2nd Annual Steps for Sickle Cell Walk CLICK HERE
REGISTER NOW CLICK HERE
or
Scan QR CODE below
Lyons Park ( 180 Lyons Park Avenue, Mobile, AL 36604)
On-site registration and check-in: Begins at 6:30 a.m.
Walk begins: 7:30 a.m.
$25 ENTRY FEE
For additional details about the 2nd Annual Steps for Sickle Cell Walk CLICK HERE
REGISTER NOW CLICK HERE
or
Scan QR CODE below
2nd annual steps for sickle cell sponsors
GOLD SPONSOR
|
SILVER SPONSOR
Franklin Primary Health Center, Inc. Bronze Sponsor Wind Creek Walking In the Name of Strikers Club, Inc. |
exciting news - gene therapies have been approved!
The Sickle Cell Disease Association of America, Inc. (SCDAA) reported, "On Dec. 8, 2023, the Food and Drug Administration (FDA) approved two cell-based gene therapies for sickle cell disease (SCD), Casgevy from CRISPR/Vertex and Lyfgenia from bluebird bio." SCDAA went on to explain, "these are the first treatments of their kind available to individuals with SCD in the United States. The approval of these potentially curative therapies marks a major advance in the treatment of sickle cell disease; however, there are valid concerns about accessibility and the potential for adverse effects. Click the buttons below to learn more about these approvals."
Click the link below to read more about these landmark approvals:
SCDAA Statement on Gene Therapy Approval
Gene Therapy: What You Need To Know
Click the link below to read more about these landmark approvals:
SCDAA Statement on Gene Therapy Approval
Gene Therapy: What You Need To Know
Spring 2024 Sickle Cell Disease Educator/Counselor Certification Program
(HYBRID - Virtual & In Person)
April 22, 2024 thru April 25, 2024
In person at:
Holiday Inn Downtown Historic District
301 Government Street
Mobile, AL 36602
Zoom link provided to virtual participants prior to class.
Click here for more details and registration information.
April 22, 2024 thru April 25, 2024
In person at:
Holiday Inn Downtown Historic District
301 Government Street
Mobile, AL 36602
Zoom link provided to virtual participants prior to class.
Click here for more details and registration information.
The purchase of a Sickle Cell Awareness specialty license plate supports this association. Funds will come back to our organization, and will be used to support research, clinical care, and community services relevant to sickle cell disease.
The SCDAA – Mobile Chapter offers free screening for sickle cell disease and trait. If you are interested in being tested, please call 251-432-0301 and schedule and appointment.